|Posted by ourbackyardfoundation on January 24, 2013 at 9:35 PM|
The following is written by Sharon Bogan who is the Location Director - BrightStart Pediatrics in Sanford Florida.
"This is Shane! I want to tell you about his family and their current struggles and I hope that you are as inspired as I. I work at a Prescribed Pediatric Extended Care center for medically fragile children. Shane is a 4-year old boy with Down Syndrome who attends our center. Shane was born 1/16/2009 with Down Syndrome and a few holes in his heart. He was also diagnosed shortly after his 1st birthday with Pulmonary Hypertension and has been on oxygen ever since. The doctors here in Orlando are not able to operate on his heart due to the Pulmonary Hypertension and the complexities that presents. Thankfully, the family was able to find a doctor in Boston that specializes in cases like Shane’s and has agreed to see him and evaluate his case. Shane’s care and accommodations will be paid for by insurance but his parents expenses are not.
Unfortunately, the day after receiving the wonderful news that Shane was accepted in Boston, the family received devastating news about his father Leon. Leon had to go to the hospital due to dizziness and other symptoms. The doctors found a tumor and biopsy results unfortunately revealed a devastating diagnosis; Leon has Anaplastic Astocytoma, BRAIN CANCER. Leon will be starting a 2-year chemo therapy regiment along with radiation. He is 28years old!
Due to his health issues, Leon has not been able to work in some time and Shane’s mother Candace has been working hard trying to take care of her two men. Candace works for a pool company and during the off season, has a hard time getting the hours she needs to make ends meet. Despite all of this adversity, Candace remains strong and stead fast in caring for the loves of her life.This family doesn’t have much in the way of monetary things but what they do have is abundant love. Leon and Candace have loved and cared for Shane from the moment he came into their lives. What they can’t provide in ‘things’, they more than make up for with LOVE.
During the midst of all of the excitement for Shane and devastation from Leon’s diagnosis, Candace also found out she ispregnant! They are very excited about the new addition to the family. Their excitement about the new baby and Shane’s surgery are unfortunately dampened by the daunting years ahead for Leon and his treatment. Candace is the type of person that doesn’tlike to ask for help but this family is in dire need of help and prayers right now. "
Our Backyard Foundation learned of Shane and will be hosting "Wine with a Heart" event to benefit Shane and his family, in hopes that we can in some small way help with their needs.
Our Backyard Foundation has teamed up with Diva Wine & Desserts in Winter Park for a fun-filled afternoon of Wine, Live Music & Great Food to Benefit the Strausheim family.
You will be greeted at the door with a glass of champagne and hor d’oeuvres while you mingle with friends & family. A wine connoisseur will share his knowledge of 6 fine wines paired with Diva’s fine foods. We will also have 6 craft beers to taste as well.
Cost: $77.00 Per Person
Date: Saturday March 2nd 2013
Time: 3:00pm till 7:00pmLocation: Diva Wine & Desserts
(155 E. Morse Blvd. Winter Park Fl. 32789)